Caroline RICHARD - Patient Advocacy Director

The mother of identical twins born in 2010, both of whom were diagnosed with Prader-Willi syndrome, Caroline quickly became involved with not only the Prader-Willi France association but also on an international level with the Foundation for Prader-Willi Research (FPWR) in particular, organising annual walks to raise money for research. Caroline comes from a marketing and communication background and has a particular skill in grappling with complex and technical environments, joining OT4B in June 2020 to take on the role of patient advocate, representing their interests at each stage of development.